A Not-So-Good Day

This is a rant post, so I apologize in advance.

I'm extremely discouraged today. We had a meeting with the doctor and coordinator, and the 2 donor matches that were found removed themselves from the list when the registry contacted them. I'm trying really hard to convince myself that they had a legitimate reason, such as health problems of their own or what have you, but the pessimistic side of me is nagging me and I'm angry. I don't understand why someone would say they want to donate and then remove themselves when someone else's life depends on it. I guess I just feel that if you don't want to donate, don't sign up and that way nobody gets their hopes up.

It's not to say that we're out of options. They're currently going through the other potential matches and trying to see how closely they match and if they're still willing and all that jazz. If not, then we start looking at haplo-identical matches, which I'll get into later if that's what it comes to. Basically, we don't have any real information, we just have a series of potentials and possibilities. I understand why it's that way, but it doesn't make it any less frustrating.

Speaking of frustrations.... Our insurance company keeps denying our claims, citing pre-existing condition. Really? He hasn't used the insurance at all in the 10 months he's worked there and suddenly he has a pre-existing condition? Despite Jake talking to them and telling them that's not the case, they still continue to deny claims. IRRITATING!!! (That being said, Obamacare is still not the answer. Just had to put in my 2 cents. Plus I'm realizing we could likely feed a small country with the amount of medical bills we're experiencing. Good to know that people only really care about one thing...)

I guess I couldn't have expected that everything will go perfectly well. Otherwise cancer wouldn't be so dreaded. I guess I just had a sense that if everything was falling into place in the beginning, it would continue to do so. Silly me.

Anyway, I'm just getting things off my chest. I do so without expectation of anyone else understanding or feeling obligated to do anything. There's really nothing that can be done. I did, however, state that this blog was to express my feelings and experiences through this whole thing, so here it is. There have been better days. I anticipate worse in the future though.

(PS...our family, friends and neighbors still continue to show their love in such special ways. Thank you! We haven't forgotten you even in our frustrating times!)